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Archives for: February 9th, 2017

Registries for Rare Diseases: Involve the Patient

Written by Jennifer Huron on January 15, 2015

In a new interview with Medscape, Marshall L. Summar, chief of genetics and metabolism at Children’s National Medical Center in Washington, D.C. and NORD marshallboard member, talks about the importance of patient registries for rare diseases, and the… Read More