metachromatic leukodystrophy Archives - NORD (National Organization for Rare Disorders)

Maria Kefalas, Ph.D.: 2018 Rare Impact Award Honoree

Written by Christina Jensen on April 25, 2018

In 2009, Sociology professor Maria Kefalas, Ph.D., and her husband welcomed their fourth child to the world. They named her Calliope Joy (Cal for short) to symbolize… Read More

The Hill publishes NORD op-ed: Congress must act now to help 15 million sick children

Written by Jennifer Huron on September 15, 2016

The Hill, a top U.S. political website, read by Congressional offices, the White House, political pundits, and more, today published the following op-ed by NORD President and CEO, Peter L. Saltonstall, urging Congress to reauthorize the Rare Pediatric Disease Priority… Read More

Archives for: April 25th, 2018

Maria Kefalas, Ph.D.: 2018 Rare Impact Award Honoree

Written by Christina Jensen on April 25, 2018

The Hill publishes NORD op-ed: Congress must act now to help 15 million sick children

Written by Jennifer Huron on September 15, 2016

Alone we are rare. Together we are strong.®