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Archives for: March 15th, 2017

Ellie McGinn – 2017 Rare Impact Award Honoree

Written by on March 15, 2017

2017 Honoree
Rare Impact Award


Ellie McGinn

Ellie McGinn

At only 9 years old, Ellie McGinn is driving research for a rare and fatal disease, has educated nearly 1,000 future doctors, successfully advocated for the 21st Century Cures Act,… Read More

Member Spotlight: UMDF

Written by Lisa Sencen on June 22, 2015


The UMDF Mission is to promote research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to provide support to affected individuals and families.  To learn more about UMDF, please go to:

1.)   What does it mean to you personally to be a patient organization serving the… Read More