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Understanding Rare Disease
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What It Means To Be Undiagnosed
Find A Rare Disease Organization
Stay informed
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A Podcast For The Rare Disease Community
Rare Disease Day
Resource Library
Publications On Rare Disease
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Living with a Rare Disease
Manage your care
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Managing Your Disease
We can help
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Speak To Someone at NORD
Rare Disease Center Of Excellence
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You Are Not Alone.
Read More
Community Support
Where to start
Rare Diseases Defined
Financial & Medical Assistance
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Bringing Together Your Community
Mentoring organizations
NORD Member List
Start a Rare Disease Organization
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Rare Disease Centers of Excellence
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Gene Therapy for Rare Disease
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Data Standards for Rare Diseases
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Find a Rare Disease Care Center
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Connect
IAMRARE
®
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Add Your Expertise
Featured publication
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