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Archives for: March 23rd, 2020

NORD Member VHL Alliance Held Jeffersonian Dinner in Early March

Written by Laura Mullen on March 23, 2020

Editor’s Note: The VHL Alliance’s Jeffersonian Dinner described below took place in early March. As we now practice social distancing in light of COVID-19, in-person events of this nature should not currently be taking place. However, the Jeffersonian Dinner presents an interesting kind of event for non-profits to consider for… Read More

Richard Pazdur, M.D.: 2018 Public Health Leadership Award Honoree

Written by Lisa Sencen on April 25, 2018

Richard Pazdur, M.D. is the Director of the Food and Drug Administration’s Oncology Center of Excellence (OCE), which leverages the combined skills of the FDA’s regulatory scientists and reviewers with expertise in drugs, biologics and devices to expedite the development of novel cancer products. In his role as director of… Read More

A Group No One Applies to Join

Written by Jennifer Huron on September 14, 2016

By Elizabeth Silva Anderson, ECD Global Alliance, a NORD Member Organization

An interview with Erdheim-Chester Disease patient, Janet Bunge, in honor of Erdheim Chester Disease Awareness Week (#ECDAwareness), Sept. 12-17, 2016

I belong to ECD. A group which no one applies to join.” The spirited mother of four recounts a tale… Read More