National Center for Advancing Translational Sciences (NCATS) Archives - NORD (National Organization for Rare Disorders)

NORD Issues Statement on NIH Appointment of New Director for Office of Rare Diseases Research

Written by Jennifer Huron on September 4, 2015

The following statement was issued by Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), on the announcement that Petra Kaufmann, M.D., M.Sc., has been named director of the… Read More

Advocating for Rare Disease Patients at the NIH

Written by Jennifer Huron on August 14, 2015

NORD was glad to have the opportunity to submit comments to the National Institutes of Health (NIH) for its Strategic Plan, where we talked about the importance of programs for rare diseases, especially those for undiagnosed patients that… Read More

Archives for: September 4th, 2015

NORD Issues Statement on NIH Appointment of New Director for Office of Rare Diseases Research

Written by Jennifer Huron on September 4, 2015

Advocating for Rare Disease Patients at the NIH

Written by Jennifer Huron on August 14, 2015

Alone we are rare. Together we are strong.®