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Archives for: June 15th, 2018

NORD Meets with HHS Secretary Azar to Discuss Needs of Rare Disease Patients

Written by Laura Mullen on June 15, 2018

Washington, D.C., June 15, 2018—On Wednesday, staff from the National Organization for Rare Disorders (NORD) met with Health and Human Services (HHS) Secretary Alex Azar to discuss the needs of rare disease patients. The meeting covered orphan drug innovation, growing patient involvement at the Food and Drug Administration… Read More

NORD Issues Statement on Today’s Passage of the American Health Care Act

Written by Lisa Sencen on May 4, 2017

Washington, D.C., May 4, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to the passage of the American Health Care Act:

“Today the House of Representatives passed American Health Care Act (AHCA). We… Read More