NORD Announces Ten New Rare Disease Registries, Thanks to Multi-Year Grant from Shire
Written by Laura Mullen on September 11, 2018
Washington, D.C., September 11, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, has announced the addition of ten new rare disease registries, made possible through a multi-year grant award from Shire.
NORD’s IAMRARETM Registry Program provides a web-based tool… Read More