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Archives for: February 29th, 2020

Savannah’s Story in honor of Rare Disease Day

Written by Valaree DonFrancesco on February 29, 2020

I suffer from neuromyelitis optica, or NMO disease (sister of MS, also known as Devic syndrome) and chronic pain. I experienced my first attack in the summer and now am in the thick of my second one (a relapse), and… Read More

NORD Announces Honorees for the 2017 Rare Impact Awards

Written by Jennifer Huron on March 15, 2017

ria_jointheconversation_dateWashington, D.C., March 15, 2017—The National Organization for Rare Disorders (NORD) today announced the people, organizations, and innovators who will be honored at the 2017 Rare Impact Awards on May 18 in Washington, D.C.

The Rare Impact Awards is a… Read More