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Archives for: June 25th, 2018

NORD 35th Anniversary Blog Series: 1990s-2000s

Written by Jennifer Huron on June 25, 2018

2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary.  For the past 35 years, NORD has taken pride in being the rare disease community’s biggest advocate.  Our policy, research and other efforts have played a significant… Read More

Running for Rare Marathon Team Expands Under NORD

Written by Jennifer Huron on March 11, 2016

running4rare_NORDThe Running for Rare marathon team will expand under new governance with the National Organization for Rare Disorders (NORD), the leading independent nonprofit representing all people with rare diseases and disorders. NORD will take over the program, which uses running… Read More

Greens FORE! Dreams

Written by Christina Jensen on July 20, 2015

Genzyme is pleased to invite you to participate in our upcoming Greens Fore! Dreams Charity Golf Tournament at Sandy Burr Country Club in Wayland, MA on Monday, July 20, 2015. The event will benefit NORD (National Organization of Rare Disorders) and the Genzyme/NORD Undiagnosed Diseases Fund.

NORD, a 501(c)(3) organization, is the… Read More

Genzyme and NORD Establish Program to Help Undiagnosed Patients with Rare Diseases

Written by Mary Dunkle on December 16, 2013

CAMBRIDGE, MA and DANBURY, CT—-Genzyme, a Sanofi company, and the National Organization for Rare Disorders (NORD) today announced the creation of a fund to pay for standard diagnostic testing for people with mysterious, undiagnosed medical conditions.  The fund will help those who have applied to the National Institutes of Health… Read More