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Archives for: May 18th, 2021

NORD Announces New Board Chair and New Member of its Board of Directors

Written by Valaree DonFrancesco on May 18, 2021

Washington, DC, May 18, 2021—The National Organization for Rare Disorders (NORD®) announced that during a recent Board of Directors meeting, Kay Holcombe was elected as Chair and Dennis Jackman joined as a new Board member. Each provides a dynamic and strong track record of leadership in public and private health… Read More

NORD Welcomes Two New Members to Board of Directors

Written by Valaree DonFrancesco on December 20, 2019

Washington, DC, December 20, 2019—The National Organization for Rare Disorders (NORD)®, the leading independent nonprofit organization representing over 25 million Americans with rare diseases, announces the appointment of two new members to its Board of Directors, effective immediately.

Joining the Board of Directors… Read More

NORD Announces Four New Board Members

Written by Lisa Sencen on July 19, 2019

Washington, DC, July 19, 2019—The National Organization for Rare Disorders (NORD)®, the leading independent nonprofit organization representing the over 25 million Americans with rare diseases, announces the appointment of four new members to its Board of Directors, effective immediately.

Joining the Board of… Read More

Senate Passes Short-Term Agreement to Accelerate Treatments for 15 Million Sick Children with Rare Diseases

Written by Jennifer Huron on September 23, 2016

Unanimous vote extends the Rare Pediatric Disease Priority Review Voucher Program with important policy changes through December

Washington, D.C., September 23, 2016 – On Thursday, the Senate reached an important compromise to accelerate new treatments to help 15 million sick children with rare diseases.

Led by Senators Robert Casey (D-PA), Johnny Isakson (R-GA),… Read More