A recent article in the Financial Times (June 24, 2016) looked at the growing impact families have on medical research. According to the Center of Strategic Philanthropy at the Milken Institute, family foundations provide approximately 3 percent of all… Read More
This past week, the National Organization for Rare Disorders (NORD) was named “charity of the week” by The Week magazine. Each charity featured in The Week has earned a four-star rating from Charity Navigator, which rates non-profits on the strength… Read More
NORD’s Assistant Director of Public Policy, Paul Melmeyer, authored this great piece (below) in the March 2015 issue of the NCC Collaborator, the monthly publication from the National Coordinating Center for the Genetic Service Collaboratives (NCC). NCC focuses on bringing quality genetic and newborn screening services to local communities, and… Read More