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Archives for: November 13th, 2017

NORD Publishes New Educational Resource on Li-Fraumeni Syndrome

Written by Christina Jensen on November 13, 2017

Washington, D.C., November 13, 2017—As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on Li-Fraumeni Syndrome. This new resource is available free online to individuals around the world.

As the primary advocacy organization in the… Read More

NORD Publishes New Report on RYR-1 Related Diseases

Written by Christina Jensen on October 5, 2017

Washington, D.C., October 5, 2017—As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on RYR-1-Related Diseases. This new resource is available free online to individuals around the world.

As the primary advocacy organization in the… Read More

NORD Names New Director of Membership

Written by Jennifer Huron on April 4, 2017

Washington, D.C., April 4, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, announces the recent hire of Debbie Drell as Director of Membership.  In her role, Debbie will be responsible for overseeing NORD’s Membership programs, which support the… Read More