Scroll
To Top

Archives for: October 15th, 2018

2018 Rare Diseases & Orphan Products Breakthrough Summit

Written by Christina Jensen on October 15, 2018

NRD-1124 Summit EmailSig_1077x175_v1-01


The team at NORD is looking forward to bringing all stakeholders in rare diseases together once again for our annual Rare Diseases & Orphan Products Breakthrough Summit. We hope to see you there! Please mark the details below in… Read More

Save the Date for NORD’s 2018 Rare Summit

Written by Christina Jensen on May 21, 2018

We are looking forward to bringing all stakeholders in rare diseases together once again for our annual Rare Diseases and Orphan Products Breakthrough Summit. We hope to see you there! Please mark the details below in your calendars and keep an eye out for a registration announcement in early June.

Read More

FDA Announces First Gene Therapy in U.S.

Written by Mary Dunkle on August 31, 2017

In an action the rare disease community has been eagerly awaiting, the Food and Drug Administration (FDA) has announced the first-ever approval of a gene therapy in the U.S. The product is Kymriah, and it is approved to treat certain children and young adults who have a cancer of blood… Read More

Advance the Dialogue at the NORD Rare Summit

Written by Christina Jensen on August 15, 2017
RareSummit_Logo_RGB_240x206

It has been an interesting year for healthcare reform and the Orphan Drug Act, and as I’m sure you are aware; the conversation isn’t over yet. Major changes to healthcare and tax reform continue to be discussed and that is why it is so important that now, more than ever, rare… Read More

Providence Full and Half Marathon

Written by Christina Jensen on May 7, 2017

Running for Rare, NORD’s signature charity marathon team, will be participating in the 2017 Providence Marathon. Click here to apply.


About the Team

When you join Running for Rare, you are joining a group of individuals who are passionate and committed to an important cause. Running for… Read More