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Archives for: October 15th, 2018

2018 Rare Diseases & Orphan Products Breakthrough Summit

Written by Christina Jensen on October 15, 2018

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The team at NORD is looking forward to bringing all stakeholders in rare diseases together once again for our annual Rare Diseases & Orphan Products Breakthrough Summit. We hope to see you there! Please mark the details below in… Read More

Save the Date for NORD’s 2018 Rare Summit

Written by Christina Jensen on May 21, 2018

We are looking forward to bringing all stakeholders in rare diseases together once again for our annual Rare Diseases and Orphan Products Breakthrough Summit. We hope to see you there! Please mark the details below in your calendars and keep an eye out for a registration announcement in early June.

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FDA Announces First Gene Therapy in U.S.

Written by Mary Dunkle on August 31, 2017

In an action the rare disease community has been eagerly awaiting, the Food and Drug Administration (FDA) has announced the first-ever approval of a gene therapy in the U.S. The product is Kymriah, and it is approved to treat certain children and young adults who have a cancer of blood… Read More