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Archives for: August 14th, 2019

Registration Open for 2020 NORD Rare Summit

Written by Lisa Sencen on July 2, 2019

The time is now

  • To address affordability for patients,
  • To drive progress with a unified voice,
  • To understand the role of advancing technology in rare disease, and
  • To register for the 2019 NORD Rare Summit!

In 2019, we believe The Time is Now to prioritize action in order to develop stronger resources, build better outcomes… Read More

Featured Student: Jennifer Shoskes

Written by Lisa Sencen on November 9, 2018

NORD’s Educational Initiatives team spoke with Jennifer Shoskes, a Northeastern University graduate student and NORD Student Chapter Leader. In this interview, Jennifer talks about her inspiration for starting a NORD Student Chapter and where she hopes to see her career go working within the rare disease community.
For more… Read More