Washington, DC, October 9, 2020—On October 8 and 9, the National Organization for Rare Disorders (NORD®) virtually hosted the 2020 Rare Diseases and Orphan Products Breakthrough Summit, the first time the organization representing over 25 million Americans impacted… Read More
Washington, DC, September 10, 2020–At a time when it is vitally important for the rare disease community to come together, the National Organization for Rare Disorders (NORD®) has announced a program of broad-ranging topics with speakers of unparalleled expertise for the 2020 NORD Rare Diseases… Read More
We are at a pivotal time in rare disease, one that requires new approaches and fresh perspectives in order to achieve real progress. Given the impact of the COVID-19 pandemic on clinical trials, drug development, and pharmaceutical innovation, connecting stakeholders and advancing meaningful dialogue is now more critical than ever… Read More
At the head of the herd is… Akiva Zablocki, President, The Hyper IgM Foundation
Akiva most frequently checks his… https://www.facebook.com/Akiva
Akiva advocates for those living with… hyper IgM syndrome
Akiva is located in… New York, NY
How… Read More
Tell us a little bit about yourself! Where are you from?
My name is Viridiana Murillo, and I am from Pomona, California. I am a first-generation Mexican-American scientist and the first in my family to explore the field of genomics and data science. With six years of combined… Read More
