Written by Laura Mullen on June 11, 2020
We are at a pivotal time in rare disease, one that requires new approaches and fresh perspectives in order to achieve real progress. Given the impact of the COVID-19 pandemic on clinical trials, drug development, and pharmaceutical innovation, connecting stakeholders and advancing meaningful dialogue is now more critical than ever… Read More
Written by Laura Mullen on March 6, 2020
At the head of the herd is… Akiva Zablocki, President, The Hyper IgM Foundation
Akiva most frequently checks his… https://www.facebook.com/Akiva
Akiva advocates for those living with… hyper IgM syndrome
Akiva is located in… New York, NY
How… Read More
Written by Laura Mullen on December 6, 2019
Tell us a little bit about yourself! Where are you from?
My name is Viridiana Murillo, and I am from Pomona, California. I am a first-generation Mexican-American scientist and the first in my family to explore the field of genomics and data science. With six years of combined… Read More
Written by Laura Mullen on October 23, 2019
Health and Human Services Secretary Alex Azar speaking at the NORD Summit on October 22, 2019
Washington, DC, October 23, 2019–Earlier this week, the National Organization for Rare DisordersⓇ (NORD) broke previous records with its 2019 Rare Diseases & Orphan Products Breakthrough SummitRead More
Written by Laura Mullen on September 27, 2019
On September 26, BioNews Service published an extensive article written by reporter Larry Luxner, previewing the upcoming NORD Rare Diseases & Orphan Products Breakthrough Summit, which will be taking place October 21-22 in Washington, DC.