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Archives for: February 28th, 2022

The Most Important Holiday Most Don’t Know: Celebrating Rare Disease Day

Written by Rohan Narayanan on February 28, 2022

NORD, the official US sponsor of Rare Disease Day, is a leading voice raising awareness among the public and decision-makers about the challenges faced by the rare disease community

February 28, 2022, Washington, DC – Today is Rare Disease Day, a global celebration to raise awareness among the public and decision-makers… Read More

A Rare Report Card: NORD Grades All 50 States on Rare Disease Policy Issues

Written by Rohan Narayanan on February 22, 2022

NORD’s State Report Card Provides Critical Analysis Across Nine Policy Areas, Including Telehealth, Drug Costs, Medicaid Eligibility, and More

February 22, 2022, Washington, DC – Today, the National Organization for Rare Disorders (NORD®) published the latest edition of its annual State Report Card, which rates all 50 states and Washington, DC… Read More