Written by Christina Jensen on September 9, 2016
Written By: Kate Bartlett
“I came across NORD’s website when I was doing research for my friend Heather Von St. James who was diagnosed with mesothelioma, 3 1/2 months after giving birth to her only daughter, Lily. My co-worker Gia and I discussed the opportunity to… Read More
Written by Christina Jensen on January 18, 2016
For the ninth consecutive year, runners will join together to help raise awareness for rare diseases while fundraising to support the NORD Undiagnosed Diseases Network (UDN) Patient Assistance Program.
The 2016 team is looking for runners to join the Boston, Providence Marathon and half Marathon teams, as well as RARE Community… Read More