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Archives for: August 27th, 2021

A Life Saving Reminder – Loren’s Rare Cancer Journey

Written by Rohan Narayanan on August 27, 2021

In 2001, I was diagnosed with ocular melanoma. What makes ocular melanoma rare is that only 2,500 people are diagnosed with it each year. Following my diagnosis in October of 2001, I went through numerous tests at Sylvester Cancer Center. In November, I was admitted into the hospital where they implanted a metal plate into my left eye with 20 seeds of radiation, which was removed after a week. Read More

A Cure In Sight, in partnership with the UCSF Ocular Oncology Center and NORD, Launches Landmark Ocular Melanoma Natural History Study

Written by Valaree DonFrancesco on September 28, 2020

Cleveland, OH, September 28, 2020—A Cure in Sight and the National Organization for Rare Disorders have launched an innovative study to research ocular melanoma, a disease that can cause blindness, loss of the eye and even death from spread to other organs.

The new study, INSIGHT: A Global Ocular Melanoma Patient… Read More