Written by Jennifer Huron on November 29, 2016
We are excited to announce that U.S. lawmakers have finally reached an agreement on the 21st Century Cures Act, a game-changer for patients with rare diseases. This agreement comes more than one year after the House passed its original version of the bill. The first vote is expected to take place… Read More
Written by Jennifer Huron on November 15, 2016
On Tuesday, November 15th, take action to support the 21st Century Cures Act! This vital piece of legislation includes billions of dollars in new funding for critical research at the National Institutes of Health, new funding to accelerate drug approval at the Food and Drug Administration, and several provisions… Read More
Written by Jennifer Huron on July 14, 2016
The following statement was issued by Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), as the Senate announced it would not vote on its Cures legislation, also known as the Senate Innovations for Healthier Americans Initiative, until September at the very earliest.
“On behalf of… Read More