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Archives for: May 31st, 2018

A Celebration of NORD’s 35th Anniversary

Written by Christina Jensen on May 31, 2018

On Thursday, May 17 at the Andrew W. Mellon Auditorium in Washington, D.C. the rare disease community came together to celebrate NORD’s 35th Anniversary and to recognize the amazing accomplishments of the 2018 honorees during NORD’s 35th Anniversary Celebration presenting… Read More

NORD Launches RareInsights, New Initiative to Support Data-Driven Advocacy, and Presents 5 Myths About Orphan Drugs and the Orphan Drug Act

Written by Laura Mullen on May 29, 2018

Washington, D.C., May 30, 2018—The National Organization for Rare Disorders (NORD) today launched RareInsights™, its new initiative to expand public knowledge of rare diseases and translate that knowledge into real-world solutions for patients and families, and kicked off the program with the  infographic 5… Read More

NORD’s 35th Anniversary & Rare Impact Awards Celebration

Written by Christina Jensen on May 17, 2018

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NORD’s 35th Anniversary Celebration presenting the 2018 Rare Impact Awards will be held on May 17, 2018, in Washington, D.C. at the Andrew W. Mellon Auditorium. This event will celebrate the efforts to help the 30 million Americans with rare diseases… Read More

NORD 35th Anniversary Blog Series: The Early Years (1980s)

Written by Jennifer Huron on May 7, 2018

2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary.  For the past 35 years, NORD has taken pride in being the rare disease community’s biggest advocate.  Our policy, research and other efforts have played a significant role over the years, advocating for… Read More

NORD Shares News on 35th Anniversary Celebration Presenting the Rare Impact Awards

Written by Laura Mullen on April 12, 2018

Washington, D.C., April 12, 2018—The National Organization for Rare Disorders (NORD) has announced the latest news regarding the upcoming 35th Anniversary Celebration presenting the Rare Impact Awards on May 17 in Washington, D.C.

 

Master of Ceremonies, Patricia Richardson

Emmy Award nominated actress Patricia Richardson will join us as our Master of Ceremonies. Patricia has long… Read More