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Archives for: August 12th, 2022

NORD Statement on Passage of the Inflation Reduction Act

Written by Rohan Narayanan on August 12, 2022

Washington, DC, August 12, 2022 – Following the passage of the Inflation Reduction Act, Peter L. Saltonstall, President and CEO, the National Organization for Rare Disorders (NORD), issued the following statement:  

“The Inflation Reduction Act is a significant step forward in helping ensure that individuals… Read More

NORD Applauds House Passage of H.R. 7667, the Food and Drug Amendments of 2022

Written by Rohan Narayanan on June 8, 2022

WASHINGTON, June 8, 2022—Today, the U.S. House of Representatives passed by a vote of 392-28 the Food and Drug Amendments of 2022 (H.R. 7667), legislation with significant implications for millions of Americans living with rare diseases. The bipartisan bill is an important step forward in reauthorizing the FDA’s medical product… Read More

NORD Applauds Congressional Efforts to Restore Intent of the Orphan Drug Act

Written by Rohan Narayanan on May 11, 2022

Washington, DC — The National Organization for Rare Disorders (NORD) applauds efforts of Congressional leaders to protect the Orphan Drug Act (ODA) and ensure proper incentives are in place to continue to foster robust rare disease drug development. Last week, leaders of the House Energy and Commerce Committee… Read More

NORD Pays Tribute to Life and Service of Senator Orrin Hatch

Written by Rohan Narayanan on April 25, 2022

April 25, 2022, Washington DC—-The National Organization for Rare Disorders (NORD) today issued a statement of tribute to the life and service of the late Senator Orrin Hatch (R-UT), who passed away over the weekend.   

“Over his many years in Congress, Senator Hatch demonstrated his commitment to… Read More

NORD’s Response to the House Passage of the Build Back Better Act

Written by Rohan Narayanan on November 19, 2021

Washington, DC, November 19, 2021— Today, the House of Representatives passed H.R. 5376, the Build Back Better Act. In response, the National Organization for Rare Disorders (NORD), which represents the 25-30 million Americans living with a rare disease, released the following statement:

“Although NORD is encouraged by many provisions that will help… Read More