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Archives for: September 14th, 2017

Nearly 140 Patient Organizations Support the Orphan Drug Tax Credit

Written by Christina Jensen on September 14, 2017

Today, NORD joined nearly 140 patient organizations in sending a letter to Congress in support of the Orphan Drug Tax Credit (ODTC). We are extremely grateful to all those organizations that joined us and lent their support. It is vital that the Orphan Drug Tax Credit remains in place, and… Read More

Advance the Dialogue at the NORD Rare Summit

Written by Christina Jensen on August 15, 2017
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It has been an interesting year for healthcare reform and the Orphan Drug Act, and as I’m sure you are aware; the conversation isn’t over yet. Major changes to healthcare and tax reform continue to be discussed and that is why it is so important that now, more than ever, rare… Read More

NORD Responds to AHIP Report on Orphan Drug Act

Written by Jennifer Huron on September 2, 2016

By Peter L. Saltonstall

One of the most successful pieces of legislation ever passed by the Congress is the Orphan Drug Act of 1983 (ODA).  It was intended to stimulate the research and development of new therapies for rare diseases, which were generally neglected by the research community and the drug… Read More