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Archives for: January 9th, 2018

Nominations for the Rare Impact Awards Close Friday, January 12

Written by Lisa Sencen on January 9, 2018
Do you know a person or company making a difference in the fight against rare diseases? We want to hear about them! Submit a nomination for the 2018 Rare Impact Awards by… Read More

New Study Examines Use and Cost of Orphan Drugs

Written by Jennifer Huron on October 17, 2017

Orphan Drugs Account for Only 7.9% of Drug Spending in the U.S.

Washington, D.C., October 17, 2017—Orphan drugs accounted for only 7.9% of total drug sales in the U.S. in 2016, according to a study issued today by the QuintilesIMS Institute. The study, commissioned by the National… Read More

Registration Open!

Written by Jennifer Huron on October 13, 2017

Danbury, CT and Washington, D.C., October 13, 2017—Do you know a person or company that is making a difference in the fight against rare diseases?  Submit a nomination for the 2018 Rare Impact Awards by January 12:  rarediseases.org/rare-impact-awards.

The Rare Impact Awards celebrates efforts to help the 30 million Americans with… Read More

Over 140 Patient Organizations Support the Orphan Drug Tax Credit

Written by Lisa Sencen on September 14, 2017

Today, NORD joined over 140 patient organizations in sending a letter to Congress in support of the Orphan Drug Tax Credit (ODTC). We are extremely grateful to all those organizations that joined us and lent their support. It is vital that the Orphan Drug Tax Credit remains in place, and… Read More