Do you know a person or company making a difference in the fight against rare diseases? We want to hear about them! Submit a nomination for the 2018 Rare Impact Awards by…
Written by Jennifer Huron on January 3, 2018
January 4th Marks 35 Years of Helping People with Rare Diseases and the Beginning of a New, Year-Long Education and Awareness Campaign
This year marks the 35th anniversaries of both the Orphan Drug… Read More
Written by Jennifer Huron on October 17, 2017
Orphan Drugs Account for Only 7.9% of Drug Spending in the U.S.
Washington, D.C., October 17, 2017—Orphan drugs accounted for only 7.9% of total drug sales in the U.S. in 2016, according to a study issued today by the QuintilesIMS Institute. The study, commissioned by the National… Read More
Written by Jennifer Huron on October 13, 2017
Danbury, CT and Washington, D.C., October 13, 2017—Do you know a person or company that is making a difference in the fight against rare diseases? Submit a nomination for the 2018 Rare Impact Awards by January 12: rarediseases.org/rare-impact-awards.
The Rare Impact Awards celebrates efforts to help the 30 million Americans with… Read More
Written by Lisa Sencen on September 14, 2017
Today, NORD joined over 140 patient organizations in sending a letter to Congress in support of the Orphan Drug Tax Credit (ODTC). We are extremely grateful to all those organizations that joined us and lent their support. It is vital that the Orphan Drug Tax Credit remains in place, and… Read More