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Archives for: October 13th, 2017

Registration Open!

Written by Jennifer Huron on October 13, 2017

Danbury, CT and Washington, D.C., October 13, 2017—Do you know a person or company that is making a difference in the fight against rare diseases?  Submit a nomination for the 2018 Rare Impact Awards by January 12:  rarediseases.org/rare-impact-awards.

The Rare Impact Awards celebrates efforts to help the 30 million Americans with… Read More

Over 140 Patient Organizations Support the Orphan Drug Tax Credit

Written by Lisa Sencen on September 14, 2017

Today, NORD joined over 140 patient organizations in sending a letter to Congress in support of the Orphan Drug Tax Credit (ODTC). We are extremely grateful to all those organizations that joined us and lent their support. It is vital that the Orphan Drug Tax Credit remains in place, and… Read More

Advance the Dialogue at the NORD Rare Summit

Written by Lisa Sencen on August 15, 2017

It has been an interesting year for healthcare reform and the Orphan Drug Act, and as I’m sure you are aware; the conversation isn’t over yet. Major changes to healthcare and tax reform continue to be discussed and that is why it is so important that now, more than ever, rare… Read More