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Archives for: September 6th, 2018

NORD 35th Anniversary Blog Series: 2010-2018 (Present)

Written by Jennifer Huron on September 6, 2018

2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary.  For the past 35 years, NORD has taken pride in being the rare disease community’s biggest advocate.  Our policy, research and other efforts have played a significant… Read More

NORD Issues Statement in Response to Congressional Consideration of the Tax Cuts and Jobs Act Conference Report

Written by Christina Jensen on December 18, 2017

Washington, D.C., December 18, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to the upcoming congressional consideration of the Tax Cuts and Jobs Act Conference Report:

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NORD Issues Statement in Response to Senate Vote on the Orphan Drug Tax Credit

Written by Christina Jensen on December 2, 2017
Washington, D.C., December 2, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to the Senate passage of its Tax Cuts and Jobs Act:
“Today, the Senate voted to substantially diminish the Orphan Drug… Read More

Rare Disease Advocates Host a Save the Orphan Drug Tax Credit Rally

Written by Jennifer Huron on November 28, 2017

Patients speak out as Congress moves forward with a tax bill that would negatively impact individuals with rare diseases

Washington, D.C., November 28, 2017 –  Today, the National Organization for Rare Disorders (NORD) is hosting a Save the Orphan Drug Tax Credit Rally for the rare disease community in… Read More