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Archives for: December 7th, 2015

Pachyonychia Congenita Project

Written by Christina Jensen on December 7, 2015
  1. What does it mean to you personally to be a patient organization serving the rare community? It is all about love. With a disease as rare as Pachyonychia Congenita, patients feel alone and often scared. Others around them do not understand the pain that they are dealing with while trying… Read More