Washington, D.C., May 30, 2018—The National Organization for Rare Disorders (NORD) today launched RareInsights™, its new initiative to expand public knowledge of rare diseases and translate that knowledge into real-world solutions for patients and families, and kicked off the program with the infographic 5… Read More
Danbury, CT, October 10, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization dedicated to helping the 30 million Americans with rare diseases, announces the appointment of three new hires: Vanessa Boulanger, Director of Research Programs; Sika Dunyoh, Director of Education Programs; and Alexa Moore, Vice President… Read More
NORD, a nonprofit dedicated to helping people with rare diseases, reached a new milestone with 1 million visits to its website (www.rarediseases.org) in the past month.
“As part… Read More
The National Organization for Rare Disorders (NORD)®, the leading independent nonprofit committed to the identification, treatment and cure of rare diseases, announces the appointment of two new hires: Catherine Blansfield, M.A., B.S., R.N., has been appointed as Vice President of Patient Services and Lisa Terrizzi, J.D., as General Counsel.
“As NORD… Read More