In recent years, NORD has provided Patient Assistance Programs to assist the Chronic Granulomatous Disease (CGD), Cystinosis and Urea Cycle Disorders (UCD) communities. As of Monday, March 18, we are delighted to announce an expansion to the support we are able to provide to these communities. See… Read More
Patient Assistance Programs:
Essential Patient Access to Vital Medicines
Recently, some health care analysts have broadly criticized patient assistance programs (PAPs) as a significant cause of growth in prescription drug spending and overall health care costs. In a new paper, NORD addresses… Read More
CAMBRIDGE, MA and DANBURY, CT—-Genzyme, a Sanofi company, and the National Organization for Rare Disorders (NORD) today announced the creation of a fund to pay for standard diagnostic testing for people with mysterious, undiagnosed medical conditions. The fund will help those who have applied to the National Institutes of Health… Read More
