PAP Archives - NORD (National Organization for Rare Disorders)

New Paper Addresses Health Care Costs and Patient Assistance Programs

Written by Christina Jensen on April 29, 2016

HDR_PolicyAlert_2

Patient Assistance Programs:
Essential Patient Access to Vital Medicines

Recently, some health care analysts have broadly criticized patient assistance programs (PAPs) as a significant cause of growth in prescription drug spending and overall health care costs. In a new paper, NORD addresses… Read More

Genzyme and NORD Establish Program to Help Undiagnosed Patients with Rare Diseases

Written by Mary Dunkle on December 16, 2013

CAMBRIDGE, MA and DANBURY, CT—-Genzyme, a Sanofi company, and the National Organization for Rare Disorders (NORD) today announced the creation of a fund to pay for standard diagnostic testing for people with mysterious, undiagnosed medical conditions. The fund will help those who have applied to the National Institutes of Health… Read More

Archives for: April 29th, 2016

New Paper Addresses Health Care Costs and Patient Assistance Programs

Written by Christina Jensen on April 29, 2016

Genzyme and NORD Establish Program to Help Undiagnosed Patients with Rare Diseases

Written by Mary Dunkle on December 16, 2013

Alone we are rare. Together we are strong.®