NORD’s Work with FDA Gives Patients a Chance to Be Heard in Drug Development

Written by Valaree DonFrancesco on December 3, 2019

By Debbie Drell, Director of Membership

My sister was diagnosed with a rare disease, pulmonary hypertension, in September of 1998. At some point during her diagnosis, she was told she wouldn’t live to see her 30th birthday. She was 28. There was one… Read More