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Archives for: March 11th, 2016

Running for Rare Marathon Team Expands Under NORD

Written by Jennifer Huron on March 11, 2016

running4rare_NORDThe Running for Rare marathon team will expand under new governance with the National Organization for Rare Disorders (NORD), the leading independent nonprofit representing all people with rare diseases and disorders. NORD will take over the program, which uses running… Read More

Notification (2/25/2016): Patient Assistance Programs

Written by Jennifer Huron on February 25, 2016

Please note, if you are attempting to contact NORD’s call center and Patient Services department this morning and are experiencing any difficulty, please keep trying.  We are experiencing interruptions due to an outage caused by heavy storms that moved through our area last night.

Genzyme and NORD Establish Program to Help Undiagnosed Patients with Rare Diseases

Written by Mary Dunkle on December 16, 2013

CAMBRIDGE, MA and DANBURY, CT—-Genzyme, a Sanofi company, and the National Organization for Rare Disorders (NORD) today announced the creation of a fund to pay for standard diagnostic testing for people with mysterious, undiagnosed medical conditions.  The fund will help those who have applied to the National Institutes of Health… Read More