Written by Laura Mullen on February 19, 2021
Sometimes a helping hand is most needed when an unexpected emergency arises. NORD is committed to supporting rare disease patients and families and offers several programs to assist them in times of crisis.
NORD’s Hurricane and Natural Disaster Emergency Relief Fund provides Read More
Written by Rebecca Aune on February 9, 2021
As the saying goes, knowledge is power. It is vital that people directly impacted by the more than 7,000 rare diseases are armed with the knowledge and information they need to live their best lives while managing their rare condition. One of the pillars of NORD’s mission is educating patients… Read More
Written by Laura Mullen on April 15, 2020
Washington, DC, April 15, 2020— At this time of crisis and with the health, safety and well-being of patients and caregivers as its top priorities, the National Organization for Rare Disorders (NORD®) today launched its COVID-19 Critical Relief Program to provide much-needed assistance to members of the rare… Read More
Written by Laura Mullen on July 1, 2019
NORD’s Hurricane Emergency Relief Fund provides limited financial assistance to those with a rare disease who are victims of natural disasters.
Emergency relief funds may be requested once per household/per lifetime for up to $500.
Expenses that may be covered under this award:
Written by Lisa Sencen on December 13, 2018
For more than 35 years, NORD has been the voice of the rare disease community. Whether it’s advocating in Washington, protecting the Orphan Drug Act, working with the FDA to integrate the patient’s voice or providing assistance to those in need, NORD is the organization the rare disease community and… Read More