Scroll
To Top

Archives for: February 4th, 2020

Gina and Gia’s Story in Honor of Rare Disease Day

Written by Valaree DonFrancesco on February 4, 2020

My daughter Gia was diagnosed at birth with the rare disease sickle cell. Gia has had 5 bouts with pneumonia, many stays in ICU, and nine blood transfusions. Sickle cell disease (SCD) is a genetic blood disorder that causes normal… Read More

Tucker’s Story in Honor of Rare Disease Day

Written by Valaree DonFrancesco on February 4, 2020

This story is about my husband, Tucker. In 2004, we began to notice that he wasn’t able to play guitar like he used to, as well as that he was stumbling and falling down more. We went to the doctor… Read More