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Archives for: April 7th, 2016

Introducing the 2016 Rare Disease Day® Highlights Video

Written by Christina Jensen on April 7, 2016

Thank you to our rare disease partners and every person who worked to heighten awareness on Rare Disease Day®.  This is the one day that everyone comes together globally to bring attention to all 7,000 rare diseases that combined affect 30 million Americans–or 1 in 10 of us–and millions more… Read More

Rare Disease Day Video for 2016 Launched

Written by Christina Jensen on February 4, 2016

On Wednesday, EURORDIS released the official, global video for 2016 Rare Disease Day. The video focuses on the special moments in the lives of people living with a rare disease. EURORDIS says, “everybody experiences those special moments with their relatives, children, friends and colleagues. For people living with… Read More