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Archives for: October 1st, 2019

Rare Cancer Day 2019

Written by Lisa Sencen on October 1, 2019

NORD’s Rare Cancer Coalition is the only united group of rare cancer advocacy organizations in the United States. The objective of the coalition is to form a close-knit, multi-stakeholder community to work collaboratively on issues that the greater rare cancer community faces.

In 2019, the coalition will host the first Rare… Read More

The Honorable Michael McCaul: 2019 Rare Impact Award Honoree

Written by Lisa Sencen on May 20, 2019

Serving his eighth term in Texas’ 10th Congressional District, Congressman Michael McCaul has achieved significant advancements for the rare disease community. In particular, Congressman McCaul has been a strong supporter of pediatric cancer patients and their families. Over the course of his… Read More

Tweetchat on Pediatric Cancers, #KidsCancerChat

Written by Lisa Sencen on September 21, 2016

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September is Pediatric Cancer Awareness Month. Did you know that all pediatric cancers are rare?

Tweetchat Coordinates
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Q & A with Russ Illes, Author of Duct Tape Won’t Fix This

Written by Jennifer Huron on June 19, 2015

What can’t duct tape fix?  Russ Illes, author of Duct Tape Won’t Fix This: A Father’s Perspective on Raising a Chronically Ill Child (Riverhaven Books) says men love to use it for everything, but when faced with a sick child,… Read More