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Archives for: May 20th, 2019

The Honorable Michael McCaul: 2019 Rare Impact Award Honoree

Written by Christina Jensen on May 20, 2019

Serving his eighth term in Texas’ 10th Congressional District, Congressman Michael McCaul has achieved significant advancements for the rare disease community. In particular, Congressman McCaul has been a strong supporter of pediatric cancer patients and their families. Over the course of his… Read More

Tweetchat on Pediatric Cancers, #KidsCancerChat

Written by Christina Jensen on September 21, 2016

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September is Pediatric Cancer Awareness Month. Did you know that all pediatric cancers are rare?

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Q & A with Russ Illes, Author of Duct Tape Won’t Fix This

Written by Jennifer Huron on June 19, 2015

What can’t duct tape fix?  Russ Illes, author of Duct Tape Won’t Fix This: A Father’s Perspective on Raising a Chronically Ill Child (Riverhaven Books) says men love to use it for everything, but when faced with a sick child,… Read More