Written by Rohan Narayanan on March 3, 2022
NORD Releases New Toolkit to Inform and Guide Patient Advocacy Groups to Improve and Prioritize Equity and Accessibility in the Rare Disease Community
Washington, DC,… Read More
Written by Valaree DonFrancesco on April 28, 2021

Join over 1,000 rare disease stakeholders virtually at the World Orphan Drug Congress on Wednesday, April 28, 2021. The conference has over 50 speakers, including NORD’s President and CEO Peter L. Saltonstall, tackling topics on advanced therapies, clinical development, rare disease advocacy, and more.
Register for your free pass today: Read More
Written by Valaree DonFrancesco on February 10, 2021
In “Pandemic Won’t Stop Rare Disease Day on Feb. 28,” an article by BioNews Service’s Mary Chapman that ran on 2.10 and is being picked up by 25+ of BioNews’ rare disease community-specific newsletters, NORD and our Rare Disease Day offerings are featured prominently, including:
Written by Valaree DonFrancesco on January 28, 2021
Washington, DC, January 28, 2021— Even with the world acutely aware of public health matters in light of the COVID-19 pandemic, there are millions in the United States and around the globe living with rare diseases and accompanying life-altering issues that are Read More
Written by Valaree DonFrancesco on January 27, 2021
Washington, DC, January 27, 2021—Today, the National Organization for Rare Disorders (NORD®) and its Rare Action Network (RAN™) published the 6th Edition of the State Report Card, the annual report rating each state and Washington, DC on the most important Read More