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Archives for: February 18th, 2014

Statement on Congressman Waxman’s Retirement

Written by on January 30, 2014

The announcement by Congressman Henry A. Waxman that he will not seek re-election after this term has reminded all of us at NORD — and throughout the rare disease community — of how very much we honor and respect the numerous contributions of this brilliant and caring public official over… Read More

Staying Focused on What Really Matters About the ACA

Written by on November 4, 2013

Despite the current focus on logistical problems associated with the rollout of the Affordable Care Act, we must not forget that this law includes some important insurance reforms that were desperately needed, such as: (more…)

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