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Archives for: September 15th, 2021

NORD Statement on Proposed Changes to the Orphan Drug Tax Credit

Written by Rohan Narayanan on September 13, 2021

The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the more than 25 million Americans with rare diseases, issued the following statement in response to upcoming congressional consideration of the Build Back Better Act in the House Committee on Ways and Means:

Peter Saltonstall, CEO and President… Read More

NORD’s Rare Disease Advisory Councils

Written by Valaree DonFrancesco on June 30, 2021

On the show today, it’s all about Rare Disease Advisory Councils – or RDACs, for short. RDACs provide a platform for the rare community to have a stronger voice in state government. Joining us is NORD Director of Policy Heidi Ross, your one-stop human shop to understanding what these councils… Read More

Fifteen Months Later…

Written by Valaree DonFrancesco on June 9, 2021

Today on NORDpod, we welcome back Lesli Nordstrom, Director of Marketing and communications at NORD. As returning champion to the show, she’s back to get real about the rare disease community with reflection on the past 18 months. The pandemic’s impact cannot be understated. Millions of lives have been uprooted… Read More