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Archives for: September 1st, 2021

Newborn Screening: History, Future and Awareness Month

Written by Valaree DonFrancesco on September 1, 2021

Every September, we celebrate and raise awareness for newborn screening (NBS) in the United States and the impact it has had on millions of families. Each year, approximately four million babies are screened for serious disorders that are present at birth. Of those four million, screening identifies over 12,000 infants annually with a… Read More

The NORD Rare Disease Video Library Offers New Educational Resources

Written by Lisa Sencen on June 19, 2019

New video library launched with funding from Incyte

Washington, DC, June 19, 2019–The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has launched the NORD Rare Disease Video Library, a resource featuring videos on rare diseases and… Read More