Pre-Existing Conditions Protections Archives - NORD (National Organization for Rare Disorders)

Scroll
To Top

donate

Archives for: September 26th, 2017

NORD Issues Statement on Senate Leadership’s Recent Update on “Graham-Cassidy” Proposal

Written by Christina Jensen on September 26, 2017

Washington, D.C., September 26, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the latest effort to repeal and replace the Affordable Care Act:

“Senate Leadership announced today that they will not proceed with a… Read More

NORD Awards New Research Grants for Rare Disease Research

Written by Jennifer Huron on February 24, 2017

Washington, D.C.—February 24, 2017—The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has awarded seven new research grants to fund rare disease research.

Research grants awarded for 2016 Requests for Proposals include:

For the study of Alveolar Capillary… Read More

Tweets From NORD

#GivingTuesday is coming up in less than 2 weeks on 11/27! We're inviting the #raredisease community to join the gl… https://t.co/qATpo5jUUJ16 hours ago
#NORD Member Organizations benefit from a variety of resources including promotion of events, job openings, researc… https://t.co/a2rgwcLwFI18 hours ago
Thrilled to see big names like Mark Cuban stepping up for #rarediseases. He says, "Potentially saving lives is appe… https://t.co/lJnSvTnyF020 hours ago
RT @RareAction: Our #Indiana #RareAction Network ambassador and members are featured in The Times, Hamilton County daily newspaper guest co…20 hours ago

Follow @RareDiseases

Alone we are rare. Together we are strong.®

For Patients and Families

For Industry

For Clinicians and Researchers

For Patient Organizations

Advocate

Get Involved

Home

About

News

Events

Contact

Careers

Brand Usage Guidelines

Sign Up for NORD News!
For Email Newsletters you can trust.

Follow NORD

Site Map

Website Credits

Privacy

Copyright ©2018 NORD - National Organization for Rare Disorders, Inc. All rights reserved. NORD is a registered 501(c)(3) charity organization. Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.