Written by Valaree DonFrancesco on May 15, 2018
The National Organization for Rare Disorders (NORD) today issued the following statement in response to American Patients First, the Trump Administration Blueprint to Lower Drug Prices and Reduce Out-of-Pocket Costs:
Patients with rare diseases are frequently disproportionately affected by high drug prices. Rare diseases tend to be… Read More
Written by Lisa Sencen on July 12, 2017
Washington, D.C., July 12, 2017 – The National Health Council (NHC) and the National Organization for Rare Disorders (NORD) commend the House of Representatives for passing the FDA Reauthorization Act (FDARA) with overwhelming bipartisan approval.
Passing this bill is a crucial step in reauthorizing four user fee programs that ensure the Food… Read More
Written by Jennifer Huron on December 2, 2016
We are pleased to announce that today the House of Representatives has passed the National Defense Authorization Act (S.2943) with language that substantially expands coverage for medical foods in the TRICARE program. The bill will now move… Read More