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Archives for: March 16th, 2021

NORD Joins with the Krabbe Disease Community to Publish “Voice of the Patient” Report

Written by Valaree DonFrancesco on March 16, 2021

Washington, DC, March 16, 2021—The National Organization for Rare Disorders (NORD)®, together with KrabbeConnect, The Legacy of Angels Foundation, Partners for Krabbe Research, Hunter’s Hope and with additional support from Gain Therapeutics, Magneta Therapeutics, PassageBio and Neurogene, has published the “Voice of the Patient” report sharing the stories of patients… Read More

NORD Releases Statement on Orphan Drug Assessment & Pricing Summit

Written by on May 31, 2017

Washington, D.C., May 31, 2017—NORD released the following statement in advance of today’s “Orphan Drug Assessment and Pricing Summit” held by the Institute for Clinical and Economic Review (ICER):

“We are pleased to participate in ICER’s ‘Orphan Drug Assessment and Pricing Summit’, and look forward to providing the… Read More