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Archives for: May 24th, 2022

Connecticut Establishes a Permanent Rare Disease Advisory Council

Written by Valaree DonFrancesco on May 24, 2022

May 24, Hartford, CT – Yesterday, Governor Ned Lamont signed House Bill 5500 (HB 5500) into law which includes provisions to establish a permanent Rare Disease Advisory Council (RDAC) in the state of Connecticut. Connecticut established a temporary rare disease task force in 2017 that concluded its work in 2019, but the… Read More