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Archives for: February 4th, 2020

Zuhriah’s Story in Honor of Rare Disease Day

Written by Valaree DonFrancesco on February 4, 2020

This is my story of my own journey as a pyknodysostosis (PKND) patient. It began way back as any other PKNDs, but I started to experience the impact when I was five and broke my clavicle when I fell down… Read More