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Archives for: March 7th, 2018

Another Successful Rare Disease Day®

Written by Christina Jensen on March 7, 2018

Thank you to our rare disease partners and every person who worked to heighten awareness on Rare Disease Day® in 2018.  On this day, everyone RDD-LOGO-18-stickycomes together globally to bring attention to all 7,000 rare diseases that combined affect 30… Read More

Raise Your Hand for Rare Disease Research

Written by Christina Jensen on February 3, 2017

By raising your hand, you can show your support for the 30 million Americans with rare diseases.

Simply click here and Lundbeck will donate $1 to rare disease research (up to $10,000 for the campaign).  The donations will be added to a general research fund managed by NORD.  The campaign will run through the month of February in honor of Read More

NORD Awards New Research Grants for Rare Disease Research

Written by Jennifer Huron on February 18, 2016

 The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has awarded six new research grants to fund rare disease research.

“NORD research grants are funded primarily by patients, patient organizations, families and friends of patients who make possible the… Read More