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Archives for: April 20th, 2020

Update on NORD’s Recent Advocacy Work on COVID-19 for the Rare Community

Written by Laura Mullen on April 20, 2020

In this time of crisis and uncertainty, NORD’s policy team has been working to pursue policies at the federal and state levels to address COVID-19 related concerns critical to the rare disease community. 

Protecting Access to Necessary Medical Treatment During the Pandemic

Social distancing is critical for slowing… Read More

Rare Disease Day 2020 Advocacy Events Recap

Written by Laura Mullen on March 13, 2020

In 2009, NORD was invited to join the official Rare Disease Day campaign, led internationally by EURODIS. Since then, NORD has been the official US sponsor of Rare Disease Day, driving the annual campaign in the states, hosting advocacy events across the country and bringing the rare disease… Read More

Massachusetts Rare Disease Day Community Event 2020

Written by Sean Roberts on March 4, 2020

Wednesday, March 4, 2020 from 6:00pm – 8:00pm 
The Pollard Library, 401 Merrimack St, Lowell, MA 01852
Massachusetts Rare Action Network invites you to connect with patients, families, caregivers, medical professionals and… Read More

Illinois Rare Disease Day 2020

Written by Sean Roberts on March 4, 2020
Illinois Rare Disease Day
Wednesday, March 4, 2020 from 9:00am-12:00pm
State House Inn, 101 E Adams St, Springfield, IL 62701
Join patients,… Read More

Los Angeles, California Rare Disease Day 2020

Written by Sean Roberts on March 1, 2020

California Rare Action Network Rare Disease Day 2020

Sunday, March 1 at 12:30pm

Los Angeles Clippers present NORD as Non-Profit of the game
at the Staples Center, 1111 S Figueroa Street, Los Angeles, CA 90015

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