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Archives for: February 12th, 2021

Ashlee’s Story in Honor of Rare Disease Day

Written by Valaree DonFrancesco on February 12, 2021

was diagnosed with primary immunodeficiency (PI) when I was four years old. The adversities I have faced with rare disease started even before I received a life-saving diagnosis and are still something I struggle with today. In studying to be a health care Read More

NORD Featured in BioNews Service Article on Rare Disease Day Happenings

Written by Valaree DonFrancesco on February 10, 2021

In “Pandemic Won’t Stop Rare Disease Day on Feb. 28,” an article by BioNews Service’s Mary Chapman that ran on 2.10 and is being picked up by 25+ of BioNews’ rare disease community-specific newsletters, NORD and our Rare Disease Day offerings are featured prominently, including:

  • Quotes from Peter L. Saltonstall
  • Read More