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Archives for: December 10th, 2015

Rare Action™ Road Tour, Salt Lake City, UT

Written by Tim Boyd on August 7, 2015

SLC,UT

Greetings from Salt Lake City (Day 2),

As promised, I’m happy to introduce you to NORD’s State Ambassador for Utah, Gina Szajnuk. Say hello, Gina:

“I am the mother of three children with an undiagnosed genetic dysfunction. I am also undiagnosed…. Read More

Rare Action™ Road Tour, Salt Lake City, UT

Written by Tim Boyd on August 6, 2015

SLC,UT

Greetings from Salt Lake City,

This is part 1 of 2 of two posts on SLC. Tomorrow I will post on our State Ambassador, Gina Szajnuk. Today, I’m happy to share a bit about another local advocate who is doing great work… Read More

Rare Action™ Road Tour, Denver, CO

Written by Tim Boyd on August 3, 2015

Denver, CO

Greetings from Denver,

As the road tour heads further west, the distances between stops grow longer and longer. More time in the car means less time to blog. But, 10 hours and 632 miles later I made it to Denver. It was… Read More

Taking Rare Action™ on the Road

Written by Tim Boyd on August 3, 2015

Over the next few weeks, I will be driving across the country to meet with NORD members and Rare Action Network™ advocates in their community. All told, I will be traversing over 4,000 miles, and spending time in 10 different states (my full itinerary can be found below).

In… Read More