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Archives for: July 28th, 2015

Rare Action™ Road Tour, Houston, TX

Written by Tim Boyd on July 28, 2015

Houston, TX

Howdy from Houston,

The drive from Mobile, Alabama was a bit of a nightmare. The I-10 was jammed for hours so I finally thought, “hey, lets just take some byways and side streets.” About an hour into this bad… Read More

Rare Action™ Road Tour, Tallahassee, FL

Written by Tim Boyd on July 28, 2015

Tallahassee, FL Blog

Greetings from Tallahassee,

As Einstein famously postulated, time is relative. I will make use of this fact to take you back in time to my visit to Tallahassee, Florida (schedules prevented our advocate and me from posting a… Read More

Rare Action™ Road Tour, Atlanta, GA

Written by Tim Boyd on July 23, 2015

Atlanta Blog

Greetings from Atlanta, Georgia.

I am happy to introduce NORD’s State Ambassador for Georgia, Beth Nguyen. Beth is a registered nurse and Executive Director of Worldwide Syringomyelia & Chiari Task Force (a NORD member organization).  As a NORD State Ambassador,… Read More