Written by Laura Mullen on January 20, 2020
At NORD we are extremely proud to welcome our 300th member organization! Our Odyssey is a national nonprofit supporting chronic and rare disease young adult patients by providing social and emotional support in the hope of improving their quality… Read More
Written by Laura Mullen on October 1, 2019
The big day is here – Rare Cancer Day! Launched by the National Organization for Rare DisordersⓇ (NORD) and the NORD Rare Cancer Coalition, the goal of #RareCancerDay is to raise critical awareness of rare cancers and the need for greater research funding and patient support.
“I’ve never heard of that!” is… Read More
Written by Lisa Sencen on October 1, 2019
NORD’s Rare Cancer Coalition is the only united group of rare cancer advocacy organizations in the United States. The objective of the coalition is to form a close-knit, multi-stakeholder community to work collaboratively on issues that the greater rare cancer community faces.
In 2019, the coalition will host the first Rare… Read More
Written by Laura Mullen on August 21, 2019
Washington, DC, August 29, 2019–The National Organization for Rare DisordersⓇ (NORD) has announced a day devoted to raising awareness about rare cancers. Spearheaded by the NORD Rare Cancer Coalition, which is comprised of 24 rare cancer-specific Member Organizations, Rare Cancer Day will be observed on October 1 to… Read More