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Archives for: October 1st, 2019

Voices of Rare Cancer: McKinnon’s Story

Written by Valaree DonFrancesco on October 1, 2019

This is my story about NF2. This journey began when I was 16 and got hit in the head from a volleyball. I went into a routine MRI and came out with brain and spinal tumors, which lead the doctors at the time to conclude that I would be deaf… Read More

Voices of Rare Cancer: Aidan’s Story

Written by Valaree DonFrancesco on October 1, 2019

My name is Aidan, I am 19 years old and I have NF1. I have a large tumor on my neck, which goes up into my brain and down to my lungs and my left arm. I also have a number of smaller tumors throughout my body.

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Voices of Rare Cancer: Lauren’s Story

Written by Valaree DonFrancesco on October 1, 2019

My name is Lauren, I’m 23 years old and I live in Boston, MA. Two years ago, before my senior year at college, I was given the news that nobody ever wants to hear: I was told that I had a rare form of appendix cancer. Cancers and tumors of… Read More

Today is #RareCancerDay!

Written by Laura Mullen on October 1, 2019

The big day is here – Rare Cancer Day! Launched by the National Organization for Rare DisordersⓇ (NORD) and the NORD Rare Cancer Coalition, the goal of #RareCancerDay is to raise critical awareness of rare cancers and the need for greater research funding and patient support.

“I’ve never heard of that!” is… Read More