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Archives for: October 1st, 2019

Voices of Rare Cancer: Lauren’s Story

Written by Valaree DonFrancesco on October 1, 2019

My name is Lauren, I’m 23 years old and I live in Boston, MA. Two years ago, before my senior year at college, I was given the news that nobody ever wants to hear: I was told that I had a rare form of appendix cancer. Cancers and tumors of… Read More

Today is #RareCancerDay!

Written by Valaree DonFrancesco on October 1, 2019

The big day is here – Rare Cancer Day! Launched by the National Organization for Rare DisordersⓇ (NORD) and the NORD Rare Cancer Coalition, the goal of #RareCancerDay is to raise critical awareness of rare cancers and the need for greater research funding and patient support.

“I’ve never heard of that!” is… Read More

Voices of Rare Cancer: Nicole’s story

Written by Valaree DonFrancesco on September 27, 2019

My name is Nicole and I was diagnosed with Stage 3 sarcoma cancer in July 2017 at the age of 27. It was bizarre being diagnosed with cancer in the first place, but to be diagnosed with a cancer I had never heard of was even more odd…. Read More

Voices of Rare Cancer: Paul’s Story

Written by Valaree DonFrancesco on September 13, 2019

Looking back, my symptoms started as early as age 10. I lived in a heightened state of anxiety, and every day stresses seemed to become gradually more unmanageable. I didn’t know what was normal, so I just figured that was what growing up felt like. Over the next… Read More

Voices of Rare Cancer: Kristin’s Story

Written by Valaree DonFrancesco on August 30, 2019

This story is my rare cancer syndrome journey. I have a rare genetic illness called PTEN hamartoma tumor syndrome, which was diagnosed in 2011 after I was diagnosed with thyroid cancer in 2009. I am also a three-time cancer survivor, surviving two melanoma surgeries. I have undergone two… Read More