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Archives for: November 22nd, 2019

Rare Caregivers Corner: Debra’s Story

Written by Laura Mullen on November 22, 2019

One of the first caregivers to participate in the Rare Caregiver Respite Program, Debra shared with NORD how she used her award.

“I was able to meet and have dinner with one of my Peace Corps friends. We hadn’t seen each other since we left Romania in June 2001! I think… Read More

Rare Caregivers Corner: Cathy’s Respite Story

Written by Laura Mullen on November 8, 2019

My husband and I got away for a whole week! We went to a resort where we could relax by the pool and catch up on much needed sleep. To know that we had a qualified CNA taking care of our little one was such a blessing. Family… Read More

November is National Family Caregivers Month

Written by Laura Mullen on November 4, 2019

Did you know that November is National Family Caregivers Month? It’s a time to recognize family caregivers for their selfless devotion and dedication to supporting loved ones. NORD’s Rare Caregiver Respite Program is a first-of-its-kind assistance program that provides that well-deserved recognition, giving caregivers of rare disease patients… Read More