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Archives for: May 9th, 2022

Georgia Becomes 22nd State to Establish a Rare Disease Advisory Council

Written by Rohan Narayanan on May 6, 2022

New council will help educate medical professionals, government agencies, legislators, and the public about rare diseases, research and treatment

May 6, 2022, Atlanta, GA – This week, Governor Brian Kemp signed legislation into law to establish a Rare Disease Advisory Council (RDAC) in Georgia. This advisory body will be comprised of… Read More

NORD Launches Project RDAC, Announces Inaugural Meeting on December 16

Written by Valaree DonFrancesco on November 18, 2020

Washington, DC, November 18, 2020—With a mission of empowering and equipping the rare disease community to effectively engage decision-makers within their state governments, the National Organization for Rare Disorders (NORD®) has launched an initiative that will assist in building well-organized, high-functioning RareRead More